computer laptop screen half closed in dark room by Philipp Katzenberger

Letter: Secretive Government plans to build vast new database for all our NHS records, and the American corporation with its foot in the door

News OnTheWight always welcomes a Letter to the Editor to share with our readers – unsurprisingly they don’t always reflect the views of this publication. If you have something you’d like to share, get in touch and of course, your considered comments are welcome below.

This from Maggie Nelmes, Ventnor. Ed


Our NHS is in crisis. It is suffering an unprecedented workforce shortage. Yet the Government is prioritising creating a huge central database, the Federated Data Platform (FDP), costing half a billion pounds, to include ALL our NHS records, over-producing a credible workforce plan to tackle the crisis.

It has already tasked American spytech company, Palantir to design the software for the first stage, uploading our hospital records, which all hospitals must start doing by the end of March 2023.

Very easy to identify people from these ‘pseudonymised’ records
Although NHS England claims it will alter or remove identifiable personal information before handing over our records, lawyers representing three patient advocacy groups: the National Pensioners’ Convention, Just Treatment and the Doctors’ Association UK, argue that it is very easy to identify people from these ‘pseudonymised’ records.

This project has been conducted in secret. Neither parliament nor NHS patients have been asked for their consent.

An unfair advantage to win the contract
Palantir has an unfair advantage to win the contract to create the comprehensive NHS records database. It would be difficult and time-consuming to dismantle their current database and upload hospital records onto another company’s.

But this could create a dangerous private monopoly. Palantir’s Chief Executive, Alex Karp himself wrote,

“We are working towards a future where all large institutions in the United States and its allies abroad are running significant segments of their operations, if not their operations as a whole, on Palantir.”

All our NHS records will be in the hands of a private company
The Government will not reveal what shape the giant database will take, what purposes it will serve, what it will eventually cost, nor who will have access to it.

But the very fact that a single point of access to all our NHS records will be in the hands of a private company should be setting alarm bells ringing all over the country.

And what of the enormous cost, presumably diverting half a billion pounds from frontline services? Do we really need a central database for all NHS records?

Crider: Most care is delivered locally and planned regionally
Cori Crider of Foxglove says,

“For some issues – vaccination, workforce planning – there is a clear case for a national solution. But ultimately, most care is delivered locally and planned regionally.

“There are already places, such as London, that have pioneered solutions to pool patient data to plan care better – at a fraction of the FDP’s cost.

“It is far from clear how this will interact with the FDP, or whether it can survive the new system.”


Image: Philipp Katzenberger under CC BY 2.0

Advertisement
Subscribe
Email updates?
19 Comments
oldest
newest most voted
Inline Feedbacks
View all comments
henry
1, April 2023 4:33 pm

It is the first stage of assessing private insurance costs for medical treatment depending on your medical history.

At present with health travel insurance it generally doesn’t cover you, unless you pay considerably more, for pre existing illnesses. This new scheme will assess your likelihood to suffer with a particular condition in the future, and will charge you accordingly.

thedocker18
1, April 2023 10:40 pm

* small print – Big Data analysis outcomes will be shared with Big Pharma and Insurance companies.

Be warned, folk in US with Diabetes pay $900 a dose or die if they can’t afford it.

You could start by Not Voting Tory at the next election.

five4three2one
Reply to  thedocker18
2, April 2023 7:40 pm

It was Labour that brought in private contractors.

Ian Young
Reply to  five4three2one
2, April 2023 8:17 pm

The last Labour Government certainly never had a problem using spare capacity in the Private Sector to improve outcomes for NHS patients. Many people facing an 18 month wait for treatment welcomed the early relief from pain and discomfort that this policy afforded them. From what I read Wes Streeting is proposing much the same policy if Labour were to win the next General Election. We should… Read more »

Steve Goodman
1, April 2023 10:50 pm

I’m reminded of decades of related reports published by the likes of Private Eye and the Guardian, like two from the latter in the last two days. Today (Saturday) I read that “Computer systems have abruptly stopped working at the outsourcing group Capita, knocking out council phone lines and triggering fears that a company that runs crucial operations for the NHS and the military could be under… Read more »

movinon
Reply to  Steve Goodman
2, April 2023 9:19 pm

The media thrives by exciting people. In this case apparently not a cyber attack. Statement by Capita: “Following a technical problem which has affected access to some of our services today, we can confirm that we have identified an IT issue that is primarily impacting our internal systems. We are working to swiftly restore those services that have been affected and will issue a further update in… Read more »

Steve Goodman
Reply to  movinon
17, April 2023 10:47 am

Actually, as reported at the time, going back to ink and paper was exactly what had to happen when the computer system stopped running, in order to maintain some services at councils and elsewhere. And following some Easter break meetings I now know that not everyone at Capita would agree that the “technical problem/ IT issue” was something other than a cyber attack. We do know that… Read more »

Steve Goodman
Reply to  movinon
19, April 2023 5:33 pm

The Guardian reports some more related excitement today from government minister Oliver Dowden at a Belfast cyber conference, issuing a national alert to key businesses amid growing international concern about Russian hackers seeking “to disrupt or destroy” parts of the UK’s critical infrastructure…

Steve Goodman
Reply to  movinon
20, April 2023 8:35 am

Further confirmation of Crapita’s costly ‘not a cyber attack’ BS comes on the opening page of the current Private Eye (1596). They did have to admit to the Information Commissioner that the three day outage which they first falsely described as an “internal IT issue” was actually a Russian cyber attack. The Eye also reports on the outsourcing giant’s BS marketing for it’s security management services…”We’re cyber… Read more »

Tamara
2, April 2023 1:36 am

There will be legal challenges. The Government pledged in 2021 to consult the public before working with Palantir again, after openDemocracy took them to court. Now they are reneging on that agreement. In 2021, after secret government plans to hand over our medical data were leaked, many thousands of people opted out. To opt out of primary care records ‘sharing’, we had to ask for a form… Read more »

Jenny Smart
2, April 2023 7:26 am

It was assumed that if you don’t opt out that you agreed the government owned your medical data and could do want it wanted with it, ie sell it to the highest bidder. The way they went about things is fundamentally wrong, you should have been asked to opt in, not out, of the system. Basically, with the Tories you own nothing, they own your medical data,not… Read more »

Snowwolf1
2, April 2023 9:00 am

So much or Data protection, I agreed to share info with NHS not USA. Surely some legal action needs to be taken before our records are distributed world wide.

marty
2, April 2023 10:29 am

What people need to understand is that the Government (indeed most Governments) do not care one iota about the people only those power groups that help them to remain in office.

melting
2, April 2023 11:30 am

Where did Maggie find this information, if it has all been done in secret. So what can we do about it? I am feeling rather scared-we are told a lot of personal data is collected every time we use a credit card, and mobile phones too. It seems as if Big Brother is here and we are helpless.

Tamara
2, April 2023 3:05 pm

For news of what is really happening in this country and overseas, don’t rely solely, as most people do, on the television news and national press. Most newspapers are owned by big news corporations and unlikely to have editorial independence. Subscribe to and support investigative journalism online: such as openDemocracy, Big Brother Watch and Byline Times, and to campaign groups specialising in particular issues, such as Just… Read more »

Tamara
Reply to  Tamara
2, April 2023 4:19 pm

The Guardian is also noted for its investigative reporting and can be subscribed to and supported online.

five4three2one
Reply to  Tamara
2, April 2023 8:02 pm

And Owen Jones and George Monboit.

VentnorLad
2, April 2023 5:33 pm

“Do we really need a central database for all NHS records?” I’m a little torn with this one. There are certainly things I’d like central records for. If I’m away from home on holiday or working, I’d like any clinician treating me to have full, timely access to my individual medical record to aid in decision making about my care. I’m also very content to have my… Read more »

five4three2one
2, April 2023 8:00 pm

PLEASE PAY ATTRENTION TO WHAT IS HAPPENING HERE. So much for the idea to add another layer of control and remove privacy Has anyone looked at the share structure? Anyone looked at who owns the shares in Palantir either directly or through holding companies off shore or shell companies etc? I doubt it. This is not some small company with a community feel it is a billion… Read more »

reCaptcha Error: grecaptcha is not defined