Isle of Wight Conservative MP, Bob Seely, spoke on the subject of contaminated blood yesterday (Tuesday).
He cited Islanders who, having contracted illnesses linked to contaminated blood, adding that one was infected when only nine years old, asked him to speak on the issue.
Forced to pay for own treatment
They also included Freshwater resident, Janet Sheppesson, who’d told him,
“My infection has caused me to suffer from a disabling and debilitating autoimmune disease.
“You may be amazed, as I am, to know that, despite all this, I was refused funding for the new generation, direct-acting antiviral treatment for Hepatitis C by NHS England and was obliged to buy it myself earlier this year.”
Watch the speech
You can read the speech in full below or watch the three and a half minute video:
I thank the Government very much for the announcement. I am new to the issue, and I pay tribute to hon. Members who have done much work in previous years, including the hon. Member for Kingston upon Hull North (Diana Johnson), my hon. Friends the Members for Worthing West (Sir Peter Bottomley) and for Stratford-on-Avon (Nadhim Zahawi), and others who had the wisdom to champion this cause when it was not fashionable to do so.
Islanders who have been affected will be relieved that all the truth behind the scandal will come out. I suspect that some of it will make for very difficult listening indeed. I did not know whether I should speak in this debate, but I decided to do so after listening to the moving experiences of some of my residents, who asked me to come to the Chamber and listen to the debate. I am glad that I have done so, and I thank them for that suggestion.
I represent residents, as we all do, who have lived with this for decades, including people who contracted illnesses linked to contaminated blood, some of whom were infected when only nine years old. One resident, Janet Sheppesson from Freshwater in the west of my constituency, worries not only for herself but for members of her family. She told me that her life had been turned upside down by the contaminated blood:
“My infection has caused me to suffer from a disabling and debilitating autoimmune disease. You may be amazed, as I am, to know that, despite all this, I was refused funding for the new generation, direct-acting antiviral treatment for Hepatitis C by NHS England and was obliged to buy it myself earlier this year.”
Not only do the residents I represent suffer but they feel that the NHS, which let them down in the first place along with others, has not provided the support that it should have done, which concerns me.
The light of investigation, whether by the Government, media or interested parties, is critical to making progress in our society, to upholding justice and to lessen suffering. Those inquiries are often difficult, as we have seen from Hillsborough and may well see from Grenfell Tower and others. Such inquiries ask questions of those in authority and test the system. The outcome should be justice and, as other hon. Members have said, trust in the system and in people here, who are doing the right thing and battling for their constituents.
Islanders want to know the answers to a series of questions, some of which have been asked. I will not repeat those, but there are two or three outstanding questions. Will the Government at some point explain the difference between a statutory and a Hillsborough-like inquiry, especially for my constituents who are interested in participating in it? How will the widows and families of the 2,400 people who have already died be treated as participants, and how will their financial and other claims be handled? The potential criminal elements have to be investigated to their ultimate conclusion. Will the Minister reassure us that the inquiry will be time-limited, while being as comprehensive as possible?
