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It's World Autism Awareness Day and many people on the Isle of Wight are hoping this year sees a turnaround in the support given to children on the spectrum.
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autism
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A tide of questions have been posted across social media as the event fast approaches, finally triggering a response from the organisers. Details within.
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Angela Murphy from the Isle of Wight CCG will update members this week on the backlog of autism assessments, including details about a pilot to assess 50 children using an online programme.
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The new interim head of the Isle of Wight CCG said they "are absolutely understanding of the stress this has caused children and their families", but added there was a national shortage of experience in this area.
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In a report, due to be seen by the CCG board tomorrow (Thursday), concerns have been raised about the insufficient capacity in the short-term to clear the waiting list by the end of March.
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One provider, which was approached by the CCG to take on the contract, said it had to turn it down as it could not cope with the scale required — 15 assessments a week.
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After some children on the Isle of Wight have had to wait years for an autism diagnosis via the CCG, a private practice will be offering a full autism diagnosis and assessment service from next month
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This Isle of Wight teenager said, "I felt like no-one was listening and so what’s the point in being here? It felt like it couldn’t get any worse. I could not keep waking up each morning and feeling this way. I felt trapped in a cycle of negativity."
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Some parents have been waiting up to two years for a diagnosis, and today the Isle of Wight CCG has apologised unreservedly to the families affected.
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Cllr Paul Brading called the organisation of the meeting shambolic, with parents forced to sit on the floor and it being revealed ‘nothing has changed since April’.
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Figures obtained through a Freedom of Information request show that on the Isle of Wight there has been a disparity between the rate of exclusions for pupils with Autism and for the overall school population.
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A public meeting for parents and carers of children with autism will be held next week, with Healthwatch offering to raise questions on the behalf of those unable to attend.
